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Story of an Alpha Thalassemia Baby

The Demographics of Thalassemia

Demographics of Thalassemia
▶ Prevalence & Demographics: Worldwide

Thalassemia in California: The PHRESH Project

PHRESH fact sheet on thalassemia:
fact sheet

PHRESH - Public Health Research Epidemiology Surveillance


Background Data:

The Number of Identified Hemoglobin Disorders and Incidence per 100,000 births between 1998-2006

The number of identified cases of hemoglobin genotypes diagnosed between 1998 and 2006 are summarized on the table below.

from: Michlitsch J, Azimi M, Hoppe C, Walters MC, Lubin B, Lorey F, Vichinsky E. Newborn screening for hemoglobinopathies in California. Pediatr Blood Cancer. 2009 Apr;52(4):486-90. doi: 10.1002/pbc.21883 - Figure 1.

The data analyzes the genotypes of 688 sickle cell patients, 502 alpha thalassemia syndromes, 79 beta thalassemia syndromes, and 862 other hemoglobin disorders, including: 514 homozygous E, and 51 homozygous C.

The ethnicities of California newborns with Hemoglobin H from this period are illustrated below.

from: Hoppe C. Newborn screening for non-sickling hemoglobinopathies. Hematology Am Soc Hematol Educ Program. 2009:19-25 - Figure 1.

Northern California Comprehensive Thalassemia Center
UCSF Benioff Children's Hospital Oakland
747 52nd Street, Oakland CA 94609   •   Phone: (510) 428-3651   •   Fax: (510) 450-5647
© 2003-2012 Children's Hospital & Research Center Oakland
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