We hosted a thalassemia patient and family conference in Seattle on May 9th, 2015. Included here are the agenda and slide presentations. Special thanks to ApoPharma for sponsoring this event.
Agenda:
9:00am - 9:30am | Registration and continental breakfast | |
9:30am - 11:20am | Welcome | Laurice Levine, MA, CCLS |
9:50am - 11:20 am | Historical Perspective on Thalassemia and Chelation | Vasili Berdoukas, MD, Children's Hospital Los Angeles |
11:25am - 12:00pm | Iron Physiology and Alloimmunization with Transfusion | Sioban Keel, MD, Seattle Cancer Care Alliance |
12:00pm - 1:15pm | Lunch | |
1:15pm - 2:00pm | Gene Therapy Trials | Alexandria Petrusich, Blue Bird BioTech |
2:00pm - 2:30pm | Q and A panel | |
2:30pm - 2:45pm | Closing remarks | Laurice Levine, MA, CCLS |
2:45pm - 3:30pm | Afternoon Social |
Presentations:
Gene Therapy Trials: Alexandria Petrusich -Blue Bird BioTech
Iron Physiology and Alloimmunization with Transfusion: Sioban Keel, MD -Seattle Cancer Care Alliance
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Historical Perspective on Thalassemia and Chelation: Vasili Berdoukas, MD -Children's Hospital Los Angeles
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