▶ About us
▶ News & Events
▶ For Physicians
▶ How you can help
▶ Site Map
Sign up for our mailing list!
Visit our Facebook page
The Benefits of Exercise
New Fetal Transplant Study
Thalassemia Adoption Clinic
Sign up for our newsletter
Story of an Alpha Thalassemia Baby

The Demographics of Thalassemia

Demographics of Thalassemia
▶ Prevalence & Demographics: Worldwide

Thalassemia in California: The PHRESH Project

PHRESH fact sheet on thalassemia:
fact sheet

PHRESH - Public Health Research Epidemiology Surveillance


Background Data:

The Number of Identified Hemoglobin Disorders and Incidence per 100,000 births between 1998-2006

The number of identified cases of hemoglobin genotypes diagnosed between 1998 and 2006 are summarized on the table below.

from: Michlitsch J, Azimi M, Hoppe C, Walters MC, Lubin B, Lorey F, Vichinsky E. Newborn screening for hemoglobinopathies in California. Pediatr Blood Cancer. 2009 Apr;52(4):486-90. doi: 10.1002/pbc.21883 - Figure 1.

The data analyzes the genotypes of 688 sickle cell patients, 502 alpha thalassemia syndromes, 79 beta thalassemia syndromes, and 862 other hemoglobin disorders, including: 514 homozygous E, and 51 homozygous C.

The ethnicities of California newborns with Hemoglobin H from this period are illustrated below.

from: Hoppe C. Newborn screening for non-sickling hemoglobinopathies. Hematology Am Soc Hematol Educ Program. 2009:19-25 - Figure 1.

Northern California Comprehensive Thalassemia Center
UCSF Benioff Children's Hospital Oakland
747 52nd Street, Oakland CA 94609   •   Phone: (510) 428-3347   •   Fax: (510) 450-5647
© 2003-2012 Children's Hospital & Research Center Oakland
Facebook logo Twitter logo Youtube logo Blogger logo
| Home | Our Program | Contact Us | For physicians | What is thalassemia? | Genetics | Treatment | Research | Living with thalassemia | Site Map |