Thalassemia specialty care centers in the Western United States
The objectives of this project are to (a) develop a survey to distribute to the Thalassemia Western Consortium (TWC) to assess current transfusion practices and conduct a needs assessment of these centers (b) develop standards of care (SOC) clinical guidelines for transfusion in thalassemia based on all available evidence and input from the partners on this grant, and (c) disseminate the guidelines within the TWC.
UCSF Benioff Children's Hospital has distributed the Survey to the TWC members. Following this, the survey will be piloted for data collection on transfusions in thalassemia at the TWC sites in California and adjacent states. All sites will then participate in the second TWC regional meeting to be held in Los Angeles in November 2016. This project’s outcomes and strategies will be reviewed, with particular reference to obstacles in collection of transfusion data for patients with thalassemia.
Alliance for Childhood Diseases
Children's Specialty Center of Nevada
Las Vegas, NV
Physicians:
| Physician: | Nurse Practitioner: |
|---|---|
Alan Ikeda, MD |
Jordan Lipio |
Center for Inherited Blood Disorders (CIBD)
1010 W. La Veta Avenue, Suite 670
Orange, CA 92868
Physicians: Diane J. Nugent, MD; Susan Claster, MD
Nurse Practitioner: Khanh Pham, RN, BSN
Clinic telephone: (714) 221-1200
CIBD’s mission is to deliver the highest quality comprehensive healthcare to individuals of all ages with complex and chronic inherited blood disorders so that they can achieve longer, healthier and more productive lives.
Lucile Packard Children’s Hospital Stanford
Bass Center for Childhood Cancer and Blood Disorders
725 Welch Road, Suite 150
Palo Alto, CA 94304
Physicians: Bertil Glader, MD, PhD; Michael Jeng, MD; Clara Lo, MD; Jennifer Andrews, MD; Anu Narla, MD
Nurse Practitioners: Judie Lea, PNP; Nancy Lea, PNP; Kirsten Mouradian, FNP
Clinic Telephone: (650) 497-8953
http://www.stanfordchildrens.org/en/service/hematology
Oregon Health and Sciences University
Portland, OR
| Physician: | Nurse Practitioner: | Social Worker: |
|---|---|---|
Trisha Wong, MD |
Jolene Taylor |
Cheslea Kaye, MSW |
Phoenix Children's Hospital
Center for Cancer and Blood Disorders
1919 E. Thomas Avenue
Phoenix, AZ 85016
Physicians: Sanjay Shah, MD; Esteban Gomez, MD
Nurse Practitioners: Kristen Way; Brooke Cook, NP; Kelli Tucker, NP
We are the largest thalassemia center in state of Arizona. We provide comprehensive care and counseling for full spectrum of thalassemia syndromes. We are able to do same day transfusions at our main campus as well as satellite clinics. We have dedicated physicians taking care of thalassemia with focused expertize in management of thalassemia and iron overload. We have our adult transition program at the same location.
Rady Children's Hospital
Peckham Center for Cancer & Blood Disorders
Acute Care Pavilion, 2nd Floor
3010 Children’s Way, San Diego, CA 92123
Clinic Telephone: (858) 966-6709 (case manager, Elizabeth Shehee; this is her direct line)
Nurse Practitioner: Kate Keese, NP
Physicians:
Stanford University Medical Center
Division of Hematology/Oncology
1000 Welch Road, Stanford, CA 94304
Nurse Practitioner: Betsy Threadgill
Physicians:
UC Davis Medical Center
2279 45th Street
Sacramento, CA 95817
Physicians: Jo Chung, MD
Nurse Practitioners: Michelle Adams, RN
Clinic Telephone: (916) 734-5959
UCSF Benioff Children's Hospital Oakland
747 52nd St.
Oakland, CA 94609
Clinic Telephone: (510) 428-3372
http://www.childrenshospitaloakland.org/main/departments-services/thalassemia-12.aspx
Nurse Practitioner: Shannon Gaine, PNP
Physicians:
UCSF Medical Center
San Francisco, CA
Physicians:
University of Washington
Seattle, WA
Nurse Practitioner: Amanda Weatherford
Physicians: Sioban Keel, MD
Valley Children's Hospital
Thalassemia Program
9300 Valley Children’s Place
Madera, CA 93636
Physicians: Latha Rao, MD; Thal Coordinator
Vinod Balasa, MD Hem/Onc Director
Nurse Practitioners: Terea Giannetta, DNP, CPNP, FAANP
Clinic Telephone: (559) 353-5460
