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The Demographics of Thalassemia

Demographics of Thalassemia
▶ Prevalence & Demographics: Worldwide

Thalassemia in California: The PHRESH Project

 
 
PHRESH fact sheet on thalassemia:
fact sheet
 

PHRESH - Public Health Research Epidemiology Surveillance

PHRESH logo

The California PHRESH Project is a two-year project funded by the Centers for Disease Control and Prevention. PHRESH stands for the Public Health, Research, Epidemiology & Surveillance in Hemoglobinopathies.

Project Objectives:

  1. To determine the need and approach for raising awareness about thalassemia and sickle cell disease throughout the state for a variety of audiences including individuals affected by these hemoglobinopathies and their families, providers, community based organizations, policy makers and others.

  2. To develop scientifically sound methods to identify adults and children affected by thalassemia and sickle cell disease in California and describe their characteristics (e.g., age, sex, health care utilization, complications, and treatments).

Using data provided by Hemoglobinopathy Care Centers in California, we are working on validating and improving the existing RuSH (Registry and Surveillance for Hemoglobinopathies project) data and the RuSH case definitions for thalassemia and sickle cell disease.

Project Partners:

Project Products:

Final Project Report

The PHRESH project has concluded. Read the final report.

Updated 8/10/2015


Northern California Comprehensive Thalassemia Center
UCSF Benioff Children's Hospital Oakland
747 52nd Street, Oakland CA 94609   •   Phone: (510) 428-3651   •   Fax: (510) 450-5647
© 2003-2012 Children's Hospital & Research Center Oakland
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