PHRESH - Public Health Research Epidemiology Surveillance
The California PHRESH Project is a two-year project funded by the Centers for Disease Control and Prevention. PHRESH stands for the Public Health, Research, Epidemiology & Surveillance in Hemoglobinopathies.
Project Objectives:
- To determine the need and approach for raising awareness about thalassemia and sickle cell disease
throughout the state for a variety of audiences including individuals affected by these hemoglobinopathies and
their families, providers, community based organizations, policy makers and others.
- To develop scientifically sound methods to identify adults and children affected by thalassemia and sickle cell disease
in California and describe their characteristics (e.g., age, sex, health care utilization,
complications, and treatments).
Using data provided by Hemoglobinopathy Care Centers in California, we are working on validating and improving the existing RuSH (Registry and Surveillance for Hemoglobinopathies project) data and the RuSH case definitions for thalassemia and sickle cell disease.
Project Partners:
- UCSF Benioff Children’s Hospital Oakland
- Children’s Hospital Los Angeles
Project Products:
- "Impact of Immigration and Migration on Thalassemia Surveillance in California, 2004-2008", Blood: 124 (21), Dec 6, 2014. S. Paulukonis, R. Currier, T. Coates, E. Vichinsky, L. Feuchtbaum.
- California Thalassemia Fact Sheet
- Additions to the Thalassemia.com web site
- New social media sites for Thalassemia Outreach
- California Sickle Cell Disease Fact Sheets
- Other sickle cell resources
- Sickle Cell Disease Public Service Announcement
- Sickle Cell web site
- Sickle Cell Facebook
Final Project Report
The PHRESH project has concluded. Read the final report.
Updated 8/10/2015
