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  • 2015-2016 Thalassemia Outreach Intern Team
  • Sign up for our newsletter
  • New multidisciplinary center for Alpha Thalassemia Major
  • Twin girls from China reunited at our thalassemia center
  • View the slide presentations from the 2015 Seattle thalassemia patient and family conference
  • My Experience iwth Gene Therapy
  • How you can help
  • Visit our Facebook page
  • Focus on Alpha Thalassemia, by Ash Lal MD
  • Painted Turtle Camp July 17-22
  • Thalassemia Fact Sheet
  • Thalassemia: The Passion to Help Others
  • Thank you, Italian Catholic Federation (ICF)!
  • survey
2015-2016 Thalassemia Outreach Intern Team1 Sign up for our newsletter2 New multidisciplinary center for Alpha Thalassemia Major4 Twin girls from China reunited at our thalassemia center5 Slides: Seattle thalassemia patient and family conference6 My Experience iwth Gene Therapy7 How you can help8 Visit our Facebook page9 Focus on Alpha Thalassemia, by Ash Lal MD10 Painted Turtle Camp July 17-2211 Thalassemia Fact Sheet12 Thalassemia: The Passion to Help Others13 14 Thank you, Italian Catholic Federation (ICF)!14 15 slideshow jquery by WOWSlider.com v8.2

Living with Thalassemia

Living with Thalassemia
▶ Life Stages:
  1. Infancy
  2. Toddler
  3. School Years
  4. Adolescence
  5. Adulthood
Transition
▶ Nutrition
▶ Immunization
▶ Fertility/Pregnancy
▶ Patient Stories
▶ Resources and Support:

Life Stages: Adulthood

adult The responsibilities of adult life can get even more complicated in the presence of a chronic illness. Adults face the challenge of maintaining relationships, work, medical insurance, and managing an often complicated medical disease. For some, reaching adulthood may also mean a change in their system of medical care from a pediatric setting to an adult setting. Compliance with medical management continues to be an issue as patients balance the issues of the use of invasive medical procedures and quality of life.

Please read "Proposal: Living as an Adult in a Pediatric World" in our Patient Forum Section.

What you can do as an adult:


Northern California Comprehensive Thalassemia Center
UCSF Benioff Children's Hospital Oakland
747 52nd Street, Oakland CA 94609   •   Phone: (510) 428-3651   •   Fax: (510) 450-5647
© 2003-2012 Children's Hospital & Research Center Oakland
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