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Thalassemia.com Site Map

ABOUT US:
  1. Our Program
    1. PDF flyer
  2. Our Services
  3. Intrauterine Therapy Center for Alpha Thal Major
  4. Our Facility
  5. Bone Density Clinic
    1. Location/Directions
    2. Referral form
  6. Our Staff
    1. Shannon Gaine, FNP
  7. How to contact us
  8. Volunteer and Intern Program
    1. DeCal Spring 2014, Mohith Subbharao
    2. "Thalassemia Blood Drive", Rosheen Birdie
    3. "Reach Out and Engage", Wendi Gu
    4. My Incredible Journey To Raise Awareness, Andrew Shieh
    5. 2013 Volunteers: Maggie and Clara
    6. "Project Thal", Maggie Leinen
    7. Reflections of a Volunteer", Zo� Oppenheimm
    8. "Uncovering Thalassemia", Rilee Hakola, Denise Corriveau
    9. "Thalassemia Awareness" by Sushrita Neogi
  9. News and Events
    1. Newsletter sign-up
    2. Dr. David Weatherall: birthday
    3. Laurice Levine: Pope Award
    4. 2014 Patient Family Conference
    5. 2015 Patient Family Conference, Seattle
  10. Our blog
  11. For Physicians
  12. How You Can Help
  13. How to contact us
  14. Our social media sites:
TREATMENT
  1. DNA testing prior to treatment
  2. Blood transfusions
  3. Iron overload and chelation
    1. Introduction
    2. Deferoxamine Desferal)
          -- comprehensive guide
      1. toxicity
      2. supplies
      3. administration
      4. side effects
      5. storage
    3. Deferasirox (Exjade)
    4. Deferiprone (L1/Ferriprox)
    5. High-dose/Comb Therapy
  4. Splenectomy
  5. Thromboembolic disease
  6. Hemoglobin H disease:
    1. Overview
    2. Guidelines
  7. Iron measurement
    1. SQUID
    2. SQUIDS Across the Globe
  8. Bone Health/DXA
  9. Treatment timetable
  10. Bone marrow transplant
    1. HLA genetics
    2. BMT factsheet
  11. Hydroxyurea
  12. Standard of Care Guidelines
    1. Introduction
    2. DNA Testing
    3. Diagnosis
    4. Transfusion
    5. Chelation
    6. Imaging to Monitor Iron Overload
    7. Chelation Toxicity
    8. Liver & Gallbladder disease
    9. Endocrine Dysfunction
    10. Cardiac Dysfunction
    11. Pulmonary Care
    12. Pain Syndrome
    13. Hematopoietic Cell Transplantation
    14. Acute Infection
    15. Dental
    16. Nutrition
    17. Vaccinations
    18. Fertility and Pregnancy
    19. Thalassemia Intermedia
    20. Hemoglobin H Disease
    21. Thalassemia Research
    22. Psychosocial Support
    23. Genetic Testing
    24. Timetable: Clinical & Lab Evaluation
    25. Authors
    26. Support
    27. References
    28. Download the PDF
  13. Non-transfusion dependent thalassemia:
    1. TIF guidelines
    2. Review article
  14. MISC:
    1. Interview with Dr. Li Zhu
TREATMENT CENTERS
  1. Thalassemia Western Consortium
DIAGNOSIS
  1. Symptoms
  2. Diagnosing thalssemia
    1. Newborn screening
  3. Untreated thalassemia
WHAT IS THALASSEMIA?
  1. Alpha Thalassemia
  2. Beta Thalassemia
    1. Trait/Minor
    2. Intermedia
    3. Thalassemia Major
  3. Hemoglobin H and variants
  4. Thalassemia disease and trait flyer
  5. Thalassemia fact sheet
GENETICS
  1. Genetics 101
  2. Inheritance
  3. Thalassemia Trait
  4. Genetic testing
  5. Trait testing
  6. Hemoglobin E Trait
  7. Family letter: alpha trait
  8. Family letter: beta trait
  9. Genetic counseling/testing
  10. Prevalence and Demographics
  11. Genotyping to Determine Blood Type
DEMOGRAPHICS
  1. Worldwide
  2. Thalassemia in China
  3. California (PHRESH project)
    1. PHRESH intro
    2. Thalassemia Fact Sheet
    3. California data: birth prevalence
    4. California data: Hb E
    5. California data: Incidence of Hb disorders
    6. California data:Alpha Thal and Hb H
    7. PHRESH Final Report 2015
RESEARCH
  1. Our research section is being updated and is presently incomplete.
  1. Research update PDF: 2012 version
  2. SQUID
  3. DXA
  4. Published Articles about Thalassemia
  5. Fetal Transplant Study
LIVING WITH THALASSEMIA
  1. Life stages
    1. Infant
    2. Toddler
    3. School age
    4. Adolescent
    5. Adult
  2. Transition
  3. Nutrition
    1. Nontransfused Diet
    2. Calcium
    3. Simple Suggestions
    4. Exercise (article)
    5. Exercise (slides)
    6. Talking Nutrition with Connie Schroepfer
  4. Immunization
  5. Fertility & Pregnancy
  6. Patient stories
    1. Thuy Carpenter
    2. Chandan Das
    3. Paul DiLorenzo
    4. Meghan Foe
    5. Jane Huynh
    6. Rammeet Kaur
    7. Perry Lai
    8. Imsub Monmeesin
    9. Braulio Navarro
    10. Huythong Nguyen
    11. Olivia Stahl
    12. Siddhant Talwar 2009
    13. Siddhant Talwar 2015
    14. Abby Torkelson
    15. Karim Zamani
    16. Natalie Maino
  7. Resources & Support
    1. Psychosocial
    2. Child Life
    3. Social Services
    4. Travel/Transportation
    5. Provider list
    6. Support groups
    7. Other organizations
      1. Painted Turtle Camp
      2. Make-A-Wish Foundation
      3. Cooley's Anemia Foundation
    8. Perspectives Newsletters
      1. Aug 2014
      2. Jan 2014
      3. May 2013
      4. Jan 2013
      5. May 2012
      6. Nov 2011
      7. Jan 2011
      8. Winter 2010
      9. Winter 2009
      10. Winter 2008
      11. Summer 2008
      12. Winter 2007
      13. Summer 2007
      14. Spring 2007
      15. Spring 2006
      16. Fall 2005
      17. Summer 2003
      18. Spring 2003
    9. Brochure translations:
    10. Relevant links

Updated 1/7/2019


Northern California Comprehensive Thalassemia Center
UCSF Benioff Children's Hospital Oakland
747 52nd Street, Oakland CA 94609   •   Phone: (510) 428-3347   •   Fax: (510) 450-5647
© 2003-2012 Children's Hospital & Research Center Oakland
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