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Thalassemia.com Site Map

  1. Our Program
  2. Our Services
  3. Our Facility
  4. Bone Density Clinic
    1. Location/Directions
    2. Referral form
  5. Our Staff
  6. How to contact us
  7. Volunteer and Intern Program
    1. 2014 Internship Program
    2. Welcome 2013 Interns
    3. "Thalassemia Blood Drive", Rosheen Birdie
    4. "Reach Out and Engage", Wendi Gu
    5. My Incredible Journey To Raise Awareness, Andrew Shieh
    6. 2013 Volunteers: Maggie and Clara
    7. "Project Thal", Maggie Leinen
    8. Thalassemia Awareness: A Volunteer Experience, Ivanna Pincilotti
    9. Reflections of a Volunteer", Zoƫ Oppenheimm
    10. "Uncovering Thalassemia", Rilee Hakola, Denise Corriveau
    11. "Thalassemia Awareness" by Sushrita Neogi
  8. News and Events
    1. Newsletter sign-up
    2. Dr. David Weatherall: birthday
    3. Laurice Levine: Pope Award
    4. 2014 Patient Family Conference
  9. Our blog
  10. For Physicians
  11. How You Can Help
  12. How to contact us
  13. Our social media sites:
  1. Alpha Thalassemia
  2. Beta Thalassemia
    1. Trait/Minor
    2. Intermedia
    3. Thalassemia Major
  3. Hemoglobin H and variants
  1. Genetics 101
  2. Inheritance
  3. Thalassemia Trait
  4. Genetic testing
  5. Trait testing
  6. Hemoglobin E Trait
  7. Family letter: alpha trait
  8. Family letter: beta trait
  9. Genetic counseling/testing
  10. Prevalence and Demographics
  1. Worldwide
  2. California (PHRESH project)
    1. PHRESH intro
    2. California data: birth prevalence
    3. California data: Hb E
    4. California data: Incidence of Hb disorders
    5. California data:Alpha Thal and Hb H
  1. Symptoms
  2. Diagnosing thalssemia
    1. Newborn screening
  3. Untreated thalassemia
  1. DNA testing prior to treatment
  2. Blood transfusions
  3. Iron overload and chelation
    1. Introduction
    2. Deferoxamine Desferal)
          -- comprehensive guide
      1. toxicity
      2. supplies
      3. administration
      4. side effects
      5. storage
    3. Deferasirox (Exjade)
    4. Deferiprone (L1/Ferriprox)
    5. High-dose/Comb Therapy
  4. Splenectomy
  5. Thromboembolic disease
  6. Hemoglobin H disease:
    1. Overview
    2. Guidelines
  7. Iron measurement
    1. SQUID
  8. Bone Health/DXA
  9. Thalassemia checklist
  10. Bone marrow transplant
    1. HLA genetics
    2. BMT factsheet
  11. Hydroxyurea
  12. Standard of Care Guidelines
    1. Introduction
    2. DNA Testing
    3. Diagnosis
    4. Transfusion
    5. Chelation
    6. Imaging to Monitor Iron Overload
    7. Chelation Toxicity
    8. Liver & Gallbladder disease
    9. Endocrine Dysfunction
    10. Cardiac Dysfunction
    11. Pulmonary Care
    12. Pain Syndrome
    13. Hematopoietic Cell Transplantation
    14. Acute Infection
    15. Dental
    16. Nutrition
    17. Vaccinations
    18. Fertility and Pregnancy
    19. Thalassemia Intermedia
    20. Hemoglobin H Disease
    21. Thalassemia Research
    22. Psychosocial Support
    23. Genetic Testing
    24. Timetable: Clinical & Lab Evaluation
    25. Authors
    26. Support
    27. References
    28. Download the PDF
  13. Non-transfusion dependent thalassemia:
    1. TIF guidelines
    2. Review article
  1. Research update PDF
  2. TCRN
  3. Completed Studies
    1. Think Zinc
    2. Good Vibrations
    3. Transfusion Quality of Life
    4. Pain in Thalassemia
    5. Exjade Palatability
  4. Open Studies
    1. Gene Therapy Trial
    2. Iron Absorption in Thalassemia
    3. Deferasirox for Non-transfusion-dependent thalassemia
    4. Combination Chelation
    5. TLC Study extension
    6. Fertility
    7. Glutamine
    8. Thal Intermedia and Exjade
    9. New Oral Chelator
    10. Innate Immunity
    11. CDC Study
    12. Multicenter Study of Iron Overload
    13. Mitochondrial Iron
    14. Physical Activity Assessment
    15. Nutrition in Thalassemia
  5. SQUID
  6. DXA
  7. Upcoming Studies
  8. Published Articles about Thalassemia
  1. Life stages
    1. Infant
    2. Toddler
    3. School age
    4. Adolescent
    5. Adult
  2. Nutrition
    1. Diet
    2. Calcium
  3. Immunization
  4. Fertility & Pregnancy
  5. Patient stories
    1. Thuy Carpenter
    2. Chandan Das
    3. Paul DiLorenzo
    4. Meghan Foe
    5. Jane Huynh
    6. Rammeet Kaur
    7. Perry Lai
    8. Laurice Levine
    9. Braulio Navarro
    10. Olivia Stahl
    11. Siddhant Talwar
    12. Abby Torkelson
    13. Karim Zamani
  6. Resources & Support
    1. Psychosocial
    2. Child Life
    3. Psychological
    4. Social Services
    5. Outreach Sponsorship
    6. Provider list
    7. Support groups
    8. Other organizations
      1. Painted Turtle Camp
      2. Make-A-Wish Foundation
      3. Italian Catholic Federation (ICF)
            --"Live To Give", N. Malloy
            --Pope Award, L. Levine
    9. Perspectives Newsletters
      1. Jan 2014
      2. May 2013
      3. Jan 2013
      4. May 2012
      5. Nov 2011
      6. Jan 2011
      7. Winter 2010
      8. Winter 2009
      9. Winter 2008
      10. Summer 2008
      11. Winter 2007
      12. Summer 2007
      13. Spring 2007
      14. Spring 2006
      15. Fall 2005
      16. Summer 2003
      17. Spring 2003
    10. Brochure translations:
    11. Relevant links

Updated 6/3/2014


Northern California Comprehensive Thalassemia Center
747 52nd Street, Oakland CA 94609   •   Phone: (510) 428-3651   •   Fax: (510) 450-5647
© 2003-2012 Children's Hospital & Research Center Oakland
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