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  • 2015-2016 Thalassemia Outreach Intern Team
  • Sign up for our newsletter
  • New multidisciplinary center for Alpha Thalassemia Major
  • Twin girls from China reunited at our thalassemia center
  • View the slide presentations from the 2015 Seattle thalassemia patient and family conference
  • My Experience iwth Gene Therapy
  • How you can help
  • Visit our Facebook page
  • Focus on Alpha Thalassemia, by Ash Lal MD
  • Painted Turtle Camp July 17-22
  • Thalassemia Fact Sheet
  • Thalassemia: The Passion to Help Others
  • Thank you, Italian Catholic Federation (ICF)!
  • survey
2015-2016 Thalassemia Outreach Intern Team1 Sign up for our newsletter2 New multidisciplinary center for Alpha Thalassemia Major4 Twin girls from China reunited at our thalassemia center5 Slides: Seattle thalassemia patient and family conference6 My Experience iwth Gene Therapy7 How you can help8 Visit our Facebook page9 Focus on Alpha Thalassemia, by Ash Lal MD10 Painted Turtle Camp July 17-2211 Thalassemia Fact Sheet12 Thalassemia: The Passion to Help Others13 14 Thank you, Italian Catholic Federation (ICF)!14 15 slideshow jquery by WOWSlider.com v8.2

Living with Thalassemia

Living with Thalassemia: Resources & Support
▶ Psychosocial
▶ Child Life
▶ Psychological Services
▶ Social Services
▶ Outreach Sponsorship
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▶ Translated brochures
▶ Relevant links

Resources and Support

Social Services

crazy hats Social services that meet the needs of the patients in a culturally sensitive way are critical for patients with a chronic disease that requires an inordinate amount of resources.

Social services should:

Social Services at CHRCO includes the following:

  1. Emotional/Mental Health Support:
    • MSW Role: grief/crisis counseling and assessment/referrals for mental health resources.
    • Resources: ACCESS (Mental Health Hotline in Alameda County) 1-800-491-9099; contact MSW for resources outside of Alameda County.
  2. Access To Care Support:
    • MSW Role: referrals to hospital-based and community-based resources for lodging and transportation to ensure that our patients will have access to medical care at our program.
    • Resources:
      1. Transportation
        • Regional Transit Connection Discount Card Program (low-cost public transit in Bay Area) www.transit.511.org/disabled/RTDC.aspx.
        • Paratransit (door-to-door service for individuals with physical disabilities in Alameda and Contra Costa Counties): www.eastbayparatransit.org.
        • Southwest Airlines Green Pass Ticket Program (free airline tickets may be available for patients who live outside of the San Francisco Bay Area; contact MSW for details).
        • Taxi vouchers and gas money (provided by CHRCO Social Services Dept as needed: contact MSW for details).
      2. Lodging
        • Family House (CHRCO lodging program for patients who live outside the Bay Area; includes private bedrooms and communal bathrooms/kitchen; contact MSW for details).
        • Hotel Discount Programs (hospital discounts for local hotels available; contact MSW for details).
        • Section 8 Housing (public housing program for low-income individuals and families; contact MSW for details).
  3. Financial/Insurance Programs:
    • MSW Role: referrals and advocacy for state medical insurance programs and financial assistance for low-income individuals.
    • Resources:
      1. Health Insurance
      2. Disability Benefits
      3. Social Assistance
        • cash aid, food stamps in Alameda County: www.alamedasocialservices.org.Contact MSW for details on the application process within and beyond Alameda County.
      4. Employment
        • Department of Vocational Rehabilitation (state employment and life skills training program for individuals with disabilities): www.rehab.cahwnet.gov.
      5. Charitable Organizations
        • Make A Wish Foundation (program for children under age 18 with transfusion-dependent, severe forms of Thalassemia and other life-threatening conditions): www.wish.org.
        • The Wish Connection (program for children under age 18 with Thalassemia and other lifethreatening or chronic conditions): thewishconnection.org.
        • Painted Turtle Camp (annual summer camp in Southern California for children ages 16 and under with transfusion-dependent Thalassemia and other chronic conditions) www.thepaintedturtle.org.
  4. Advocacy:
    • MSW Role: to advocate for the educational and safety rights of our patients and families.
    • Resources:
      1. Educational
        • 504 Plan and IEP (for school-age children who require special accommodations for their academic curriculum due to health and other conditions): www.ed-center.com/504.Contact MSW for details on how to initiate these programs in your local community
      2. Legal
        • East Bay Community Law Center (legal aid center in Alameda County for low-income families): www.ebclc.org.
      3. Domestic Violence
        • CHRCO Center For Child Protection (counseling for children and families who are victims of domestic violence).
        • Alameda County Family Justice Center (counseling, legal assistance, and law enforcement resources for domestic violence victims): www.acfjc.org.

Northern California Comprehensive Thalassemia Center
UCSF Benioff Children's Hospital Oakland
747 52nd Street, Oakland CA 94609   •   Phone: (510) 428-3651   •   Fax: (510) 450-5647
© 2003-2012 Children's Hospital & Research Center Oakland
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