logo
▶ About us
▶ News & Events
▶ For Physicians
▶ How you can help
▶ Site Map
Sign up for our mailing list!
 
Visit our Facebook page
 
Exercise and Thalassemia
 
New Fetal Transplant Study
 
Thalassemia Adoption Clinic
 
 
 
 
 
Sign up for our newsletter
 
Story of an Alpha Thalassemia Baby


Thalassemia at UCSF Benioff Children's Hospital Oakland

About us
▶ Our program
▶ Services
▶ Intrauterine Therapy Center
▶ Facilities
▶ Research
▶ Adoption Clinic
▶ Staff
▶ Contact us
▶ Volunteer & Intern program
▶ News & Events
▶ How you can help
 
Thalassemia Standard-of-Care Guidelines (mobile optimized)

Fetal Transplant Study

Thalassemia Adoption Clinic

adoption clinic The Center provides active support for families considering international adoption of children with thalassemia major, and hosts an annual comprehensive clinic in Oakland for recently adopted children.

At our last clinic in July 2016, families who adopted a child from China with thalassemia came to our center for an annual comprehensive visit and consultation with our medical team. We saw families from five states, some traveling as far away as Oklahoma. Patients and families met over two days in our clinic with thalassemia specialists, endocrinologists, nutritionists, and licensed clinical social workers.

That evening, families attended a dinner and talk: The children participated in a program by Dancin Power, a non-profit organization that teaches interactive dance classes to patients facing chronic and life-threatening illnesses.

Parents listened to several speakers discussing topics related to thalassemia such as fertility, nutrition and supplements, endocrine Issues and gene therapy. Afterwards, speakers presented talks during dinner and were part of a panel for an informal question-and-answer session. The speakers who presented at the Dinner Talk were Dr. Mark Walters, Dr. Titi Singer, Dr. Ash Lal, Dr. Elliott Vichinsky, Dr. Tariq Ahmad, and Ellen Fung, PhD.

adoption clinic adoption clinic adoption clinic adoption clinic


Updated 1/5/2017


Northern California Comprehensive Thalassemia Center
UCSF Benioff Children's Hospital Oakland
747 52nd Street, Oakland CA 94609   •   Phone: (510) 428-3651   •   Fax: (510) 450-5647
© 2003-2012 Children's Hospital & Research Center Oakland
Facebook logo Twitter logo Youtube logo Blogger logo
| Home | Our Program | Contact Us | For physicians | What is thalassemia? | Genetics | Treatment | Research | Living with thalassemia | Site Map |