Thalassemia Western Consortium

Thalassemia specialty care centers in the Western United States

The Thalassemia Western Consortium (TWC) is a regional network of 11 thalassemia treatment centers in the Western United States. The Consortium aims to establish collaborative thalassemia standards of care, collect data on thalassemia services and outcomes, and reach hematologists outside of their group. The Consortium met in November 2018 for its fourth annual meeting in San Diego.

Consortium Activities:

Developing standards for blood transfusion in thalassemia.
Developing guidelines for managing hemoglobin H disease.
Promoting adoption of the Thalassemia Management Checklists.
Data collection for federally-funded thalassemia projects (Health Resources and Services Administration; Centers for Disease Control).
Outreach to physicians caring for patients with thalassemia through educational activities and meetings.

Web Site	Center Name and Address	Contact Info	Physicians	Clinic Staff
	Seattle Cancer Care Alliance: Fred Hutch / Seattle Children's / UW Medicine 825 Eastlake Ave. E, PO Box 19023 Seattle, WA 98109-1023	Clinic: (206) 606-7400 Clinic Coordinator: (206) 606-1260 Fax: (206) 606-1290 Email: pccheme@seattlecca.org Referrals: seattlecca.org/referrals	• Sioban Keel, MD • Kleber Fertrin, MD, PhD	Clinical Nurse Coordinator: • Amanda Weatherford, MSN, RN, OCN
Trisha Wong, MD Jolene Taylor, RN Cheslea Kaye, MSW	Oregon Health and Sciences University 3181 SW Sam Jackson Park Road Portland, OR 97239	Pediatric Clinic: (503) 418-5150 Adult Clinic: (503) 494-6594	Pediatric Hematologists: • Kristina Haley, DO • Melinda Wu, MD, MCR • Mike Recht, MD, PhD • Trisha Wong, MD, MS Adult Hematologists: • Tom Deloughery, MD • Jody Kujovich, MD • Merav Sendowski, MD • Joe Shatzel, MD	Pediatric RN: • Jolene Taylor, RN Social Worker: • Cheslea Kaye, MSW
	UC Davis Medical Center 2279 45th Street Sacramento, CA 95817	Clinic: (916) 734-5959	• Jo Chung, MD	Clinical Nurse Coordinator: • Michelle Adams, RN
Ashutosh Lal, MD Lynne Neumayr, MD Titi Singer, MD Mark Walters, MD Elliott Vichinsky, MD Anne Rishon Wendy Murphy, LCSW Lisa Du Meghan Foe Robert Yamashita, PhD Raquel Manzo	UCSF Benioff Children's Hospital Oakland Hematology/Oncology Division 747 52nd Street Oakland, CA 94609	Clinic: (510) 428-3347	Physicians: • Ashutosh Lal, MD • Lynne Neumayr, MD • Titi Singer, MD • Mark Walters, MD • Elliott Vichinsky, MD	Nurse Practitioner: • Anne Rishon, PNP Social Worker: • Wendy Murphy, LCSW Clinical Coordinator: • Raquel Manzo Study Coordinator: • Lisa Du Outreach Coordinator: • Meghan Foe Outreach Director: • Robert Yamashita, PhD
Craig Forrester, MD	UCSF Benioff Children's Hospital San Francisco 1975 4th Street San Francisco, CA 94158	Clinic: (415) 353-2986 Appointments: (415) 514-5762 Fax: (415) 514-5868	• Craig Forester, MD, PhD	Nurse Practitioner: • Laura Quill, RN, MS, CPNP Social Worker: • Michelle Wright, MSW Admin Assistant: • Judith Flores
Michael Jeng, MD Jennifer Andrews, MD	Lucile Packard Children's Hospital Stanford Bass Center for Childhood Cancer and Blood Disorders 725 Welch Road, Suite 150 Palo Alto, CA 94304	Clinic: (650) 497-8953	• Bertil Glader, MD, PhD • Michael Jeng, MD • Clara Lo, MD • Jennifer Andrews, MD • Anu Narla, MD	Nurse Practitioners: • Judie Lea, PNP • Nancy Lea, PNP • Kirsten Mouradian, FNP
	Valley Children's Hospital Thalassemia Program 9300 Valley Children's Place Madera, CA 93636	Clinic: (559) 353-5460	Thalassemia Coordinator: • Latha Rao, MD Hematology/Oncology Director: • Vinod Balasa, MD	Nurse Practitioner: • Terea Giannetta, DNP, CPNP, FAANP
	Children's Hospital of Orange County 1201 W. La Veta Orange, CA 92868	Clinic: M-F 9am-5pm: (714) 509-8459 After hours: (866) 833-2811	Director, Hemoglobinopathy Program: • Geetha Puthenveetil, MD	Clinic Coordinator and Case Manager: • Melissa Belvedere, RN, BSN
	Center for Inherited Blood Disorders CIBD 1010 W. La Veta Avenue, Suite #670 Orange, CA 92868	Clinic: (714) 221-1200	• Diane Nugent, MD • Susan Claster, MD	Clinical Nurse Coordinator: • Khanh Pham, RN, BSN
Alan Ikeda, MD Jordan Lipio, CCRP	The Alliance for Childhood Diseases Cure 4 The Kids Foundation One Breakthrough Way, Suite #300 Las Vegas, NV 89135	Clinic: (702) 732-1493	• Joseph Lasky III, MD • Kanyalakshmi Ayyanar, MD • Nik Abdul Rashid, MD • Waseem Alhushki, MD • Alan Ikeda, MD	Nurse Practitioner: • Jennifer Buitrago, APRN Clinical Research Associate: • Jordan Lipio, CCRP
William Roberts, MD Jenny Kim, MD Jenny Kim, MD Jennifer Yu, MD	Rady Children's Hospital San Diego Peckham Center for Cancer & Blood Disorders Acute Care Pavilion, 2nd Floor 3010 Children's Way San Diego, CA 92123	Thalassemia Case Manager: (858) 966-6709	Chief, Hematology/Oncology: • William Roberts, MD Physicians: • Jenny Kim, MD • Courtney Thornburg, MD • Jennifer Yu, MD	Nurse Practitioner: • Christina Killian-Benigno, NP Social Worker: • Anne Wiklund Psychologist: • Anke Reineke, PhD, BCIAC
Sanjay Shah, MD Esteban Gomez, MD Christina Knoll, MD Lori Wagner, FNP Angela Gianotti, BSN, MS, FNP-C	Phoenix Children's Hospital Center for Cancer and Blood Disorders 1919 E. Thomas Avenue Phoenix, AZ 85016	Clinic: (602) 933-0920	• Sanjay Shah, MD • Esteban Gomez, MD • Christine Knoll, MD • Jonanna Gendreau, DO	Nurse Practitioners: • Lori Wagner, FNP • Angela Gionotti, BSN, MS, FNP-C • Britt Olson, PNP Clinical Nurse Coordinator: • Darcie Drollinger, RN, BSN, CPON