- Our Program
- PDF flyer
- Our Services
- Intrauterine Therapy Center for Alpha Thal Major
- Our Facility
- Bone Density Clinic
- Location/Directions
- Referral form
- Our Staff
- Shannon Gaine, FNP
- How to contact us
- Volunteer and Intern Program
- DeCal Spring 2014, Mohith Subbharao
- "Thalassemia Blood Drive", Rosheen Birdie
- "Reach Out and Engage", Wendi Gu
- My Incredible Journey To Raise Awareness,
Andrew Shieh
- 2013 Volunteers: Maggie and Clara
- "Project Thal", Maggie Leinen
- Reflections of a Volunteer", Zo� Oppenheimm
- "Uncovering Thalassemia", Rilee Hakola,
Denise Corriveau
- "Thalassemia Awareness" by Sushrita Neogi
- News and Events
- Newsletter sign-up
- Dr. David Weatherall: birthday
- Laurice Levine: Pope Award
- 2014 Patient Family Conference
- 2015 Patient Family Conference, Seattle
- Our blog
- For Physicians
- How You Can Help
- How to contact us
- Our social media sites:
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- DNA testing prior to treatment
- Blood transfusions
- Iron overload and chelation
- Introduction
- Deferoxamine Desferal)
--
comprehensive guide
-
toxicity
-
supplies
-
administration
-
side effects
-
storage
- Deferasirox (Exjade)
- Deferiprone (L1/Ferriprox)
- High-dose/Comb Therapy
- Splenectomy
- Thromboembolic disease
- Hemoglobin H disease:
- Overview
- Guidelines
- Iron measurement
- SQUID
- SQUIDS Across the Globe
- Bone Health/DXA
- Treatment timetable
- Bone marrow transplant
- HLA genetics
- BMT factsheet
- Hydroxyurea
- Standard of Care Guidelines
- Introduction
- DNA Testing
- Diagnosis
- Transfusion
- Chelation
- Imaging to Monitor Iron Overload
- Chelation Toxicity
- Liver & Gallbladder disease
- Endocrine Dysfunction
- Cardiac Dysfunction
- Pulmonary Care
- Pain Syndrome
- Hematopoietic Cell Transplantation
- Acute Infection
- Dental
- Nutrition
- Vaccinations
- Fertility and Pregnancy
- Thalassemia Intermedia
- Hemoglobin H Disease
- Thalassemia Research
- Psychosocial Support
- Genetic Testing
- Timetable: Clinical & Lab Evaluation
- Authors
- Support
- References
- Download the PDF
- Non-transfusion dependent thalassemia:
- TIF guidelines
- Review article
- MISC:
- Interview with Dr. Li Zhu
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- Thalassemia Western Consortium
- Symptoms
- Diagnosing thalssemia
- Newborn screening
- Untreated thalassemia
- Alpha Thalassemia
- Beta Thalassemia
- Trait/Minor
- Intermedia
- Thalassemia Major
- Hemoglobin H and variants
- Thalassemia disease and trait flyer
- Thalassemia fact sheet
- Genetics 101
- Inheritance
- Thalassemia Trait
- Genetic testing
- Trait testing
- Hemoglobin E Trait
- Family letter: alpha trait
- Family letter: beta trait
- Genetic counseling/testing
- Prevalence and Demographics
- Genotyping to Determine Blood Type
- Worldwide
- Thalassemia in China
- California (PHRESH project)
- PHRESH intro
- Thalassemia Fact Sheet
- California data: birth prevalence
- California data: Hb E
- California data: Incidence of Hb disorders
- California data:Alpha Thal and Hb H
- PHRESH Final Report 2015
- Our research section is being updated and is presently incomplete.
- Research update PDF: 2012 version
- SQUID
- DXA
- Published Articles about Thalassemia
- Fetal Transplant Study
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- Life stages
- Infant
- Toddler
- School age
- Adolescent
- Adult
- Transition
- Nutrition
- Nontransfused Diet
- Calcium
- Simple Suggestions
- Exercise (article)
- Exercise (slides)
- Talking Nutrition with Connie Schroepfer
- Immunization
- Fertility & Pregnancy
- Patient stories
- Thuy Carpenter
- Chandan Das
- Paul DiLorenzo
- Meghan Foe
- Jane Huynh
- Rammeet Kaur
- Perry Lai
- Imsub Monmeesin
- Braulio Navarro
- Huythong Nguyen
- Olivia Stahl
- Siddhant Talwar 2009
- Siddhant Talwar 2015
- Abby Torkelson
- Karim Zamani
- Natalie Maino
- Resources & Support
- Psychosocial
- Child Life
- Social Services
- Travel/Transportation
- Provider list
- Support groups
- Other organizations
- Painted Turtle Camp
- Make-A-Wish Foundation
- Cooley's Anemia Foundation
- Perspectives Newsletters
- Aug 2014
- Jan 2014
- May 2013
- Jan 2013
- May 2012
- Nov 2011
- Jan 2011
- Winter 2010
- Winter 2009
- Winter 2008
- Summer 2008
- Winter 2007
- Summer 2007
- Spring 2007
- Spring 2006
- Fall 2005
- Summer 2003
- Spring 2003
- Brochure translations:
- Relevant links
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